Paroxysmal Nocturnal hemoglobinuria (PNH) Registry

Inclusion Criteria

• • Patients of any age, including minors, with a diagnosis of PNH or a detected PNH clone, including patients previously treated with Soliris or Ultomiris and withdrawn from treatment. Patients who are minors must have parent/legal guardian consent and must be willing and able to give assent, if applicable as determined by the Ethics Committees/Institutional Review Boards. Upon attaining adulthood, these patients must be re-consented.
• • Ability to comprehend and sign consent to have data entered in the PNH Registry.